Speakers

Leah Stavenhagen is a leader in the ALS community and a published author, who splits her time between New York and Paris. She began a career in management consulting in Paris at 26, and, at the same time, was diagnosed with ALS. Now, more than eight years after the onset of symptoms, she focuses her energy on advocacy work, launching Her ALS Story in 2021 to create a vibrant network for young women living with ALS. In addition, she is a board member of the primary French ALS organization, ARSLA, as well as part of the patient advisory committees for Target ALS and The International Alliance of ALS/MND Organizations.